Research in global health emergencies: ethical issues
The Nuffield Council on Bioethics
Institute for Research & Development in Health & Social Care, contributions toward bioethics cited 7 times
The Institute for Research & Development in Health & Social Care (IRD) takes pride in our contributions towards Disaster Ethics, under the leadership of Prof. Athula Sumathipala, having been cited 7 times by The Nuffield Council on Bioethics in their latest report titled “Research in global health emergencies: ethical issues”.
Furthermore, Prof. Sumathipala was an external reviewer for this report.
The Nuffield Council on Bioethics is a UK-based independent body, which examines and reports on ethical issues in biology and medicine. It was established in 1991, and since 1994 it has been funded jointly by the Foundation, the Medical Research Council and Wellcome.
Their latest report cites the following publications by the IRD:
Sumathipala, A., Jafarey, A., Castro, L. et al. (2010). Ethical issues in post-disaster clinical interventions and research: a developing world perspective. Key findings from a drafting and consensus generation
meeting of the Working Group on Disaster Research and Ethics (WGDRE) 2007. Asian Bioethics Review, 2(2): 124-42.
Sumathipala, A. (2014). When Relief Comes from a Different Culture: Sri Lanka’s Experience of the Asian Tsunami. In: O’Mathúna D., Gordijn B., Clarke M. (eds) Disaster Bioethics: Normative Issues When Nothing is Normal. Public Health Ethics Analysis, vol 2. Springer, Dordrecht
Ekanayake, S., Prince, M., Sumathipala, A., Siribaddana, S. and Morgan, C. (2013), “We lost all we had in a second”: coping with grief and loss after a natural disaster. World Psychiatry, 12: 69-75. doi:10.1002/wps.20018
Fernando, B., King, M. and Sumathipala, A. Advancing good governance in data sharing and biobanking – international aspects [version 1; peer review: 2 approved]. Wellcome Open Res 2019, 4:184 (https://doi.org/10.12688/wellcomeopenres.15540.1)
Sumathipala, A., Siribaddana, S., Hotopf, M., McGuffin, P., Glozier, N., Ball, H., . . . Gunewardane, D. (2013). The Sri Lankan Twin Registry: 2012 Update. Twin Research and Human Genetics, 16(1), 307-312. doi:10.1017/thg.2012.119
These publications have been used to support their observations and augment the discourse in their report in the following sections:
Section | Point | Footnote | PDF Page | Print Page |
Introduction | 7 | 34 | 2 | |
Chapter 1 – Scope and context | What we mean by ‘global health emergency’ | Box 1.4 | Mental health needs after the 2004 tsunami: Sri Lankan perspectives | 31 | 47 | 15 | |
Chapter 1 – Scope and context | The regulatory patchwork | Sources of ethical requirements or guidance | 1.24 | 79 | 56 | 24 |
Chapter 2 – Research in context: experience of participants and researchers | Community agency and community experience | Community response in natural and human-made disasters | Individual and community-led initiatives. | 2.4 | 115 | 67 | 35 |
Chapter 4 – Developing an ethical compass | What difference does an emergency make? – conceptual approaches | 4.15 | 355 | 115 | 83 |
Chapter 8 – Collaborations and partnerships | Cooperation and collaboration between research and response | 8.6 | 571 | 200 | 168 |
Chapter 8 – Collaborations and partnerships | Collaborations within the research sector | Working towards fair and meaningful collaborations | Supporting capacity strengthening over the long-term | 8.28 | 601 | 211 | 179 |
Read more on The Nuffield Council on Bioethics report